Hi--First just wanted to let you guys know I didn't have my first treatment yet of this upcoming round because there was a mix-up at the Chemo Unit. I was supposed to start treatment at the end of July, but then it got pushed back to the beginning of August. Anyway, because of the mix-up and the fact that Dr. Mitchell was out of the office for a little while on vacation, I scheduled treatment to start on August 6, which was today, but ended up deciding not to get it which I will explain. There might be a change in the original plan of treatment that myself, my parents, and Dr. Mitchell had discussed during our appointment in July after my last set of scans. I went up to Sloan-Kettering this past weekend and had an appointment with Dr. Chung, who was the oncologist I went to for a second opinion last November when I started up treatment again because the cancer had metastasized. Erica was going up for an appointment and treatment and invited me to go along, which sounded like a fun idea and the timing worked out since I felt like it was a good time to go see Dr. Chung again to get his opinion on how to proceed with treatment at this point. So I met with Dr. Chung on Monday morning and it was a really great appointment. He was extremely pleased with the progress I have made since I last saw him in November. He kept remarking about my "tremendous response" which was really great to hear obviously!
Anyway, he went over four options that I could take going forward. The first was to do nothing, which he didn't think was a good idea. The second was to get just Avastin. The third was to get Avastin and Xeloda-Xeloda is the pill form of 5-FU. The point of getting the Xeloda versus the 5-FU is that it allows you to get on with your life since you don't need to get the infusion of 5-FU in the hospital and wear the pack. The fourth option was to be referred to a thoracic surgeon to discuss surgical removal of the remaining cancerous lymph node in my chest. This last option would be the most aggressive. I decided that just talking with the thoracic surgeon would be a good idea-no harm in just getting some information. So Dr. Chung gave me the referral to Dr. Downey and I was actually able to see him on Tuesday morning before I went home. The appointment with Dr. Downey went really well, I was very impressed with him and his staff. They took a lot of time with me and explained the surgery and gave me a lot of information. The surgery is called a thoracotomy and would involve removing some lymph nodes in my chest, also called the mediastinum. They would take out the lymph node that is cancerous that is still evident on the PET and CT scans, but would also take out some other lymph nodes in that area. Dr. Downey would make an incision in my back sort of near my armpit. The surgery is pretty major, but he has done it before and it is not a new or experimental type of surgery. In fact he said it was not a technically difficult surgery. I would be in the hospital for about four days and then spend time recovering for about 4 to 6 weeks. Having gone through 3 surgeries/procedures already, I know I could handle this.
So this is obviously a lot of info to get and a little bit unexpected. I am meeting with Dr. Mitchell tomorrow to go over all of this information and to see what she thinks about it. I also have appointments scheduled with Dr. Chung and Dr. Downey for Aug. 19, 20 so that my parents can go up with me to help me make this decision. This is a difficult decision, even though I feel like I'm in a good position. It is exciting that I have responded as well as I have to treatment and have made enough progress that some of my doctors think that surgery is an option at this point. But it is hard to make such a huge decision, especially one that could really affect my life. I have told myself from the beginning of all of this that I would do anything I could to beat this no matter what and I believe at this point that surgery is the most aggressive option for me right now and that it gives me the greatest chance of coming closer to permanently beating the cancer. While there are always risks to surgery and the recovery will be painful, right now it seems worth it to endure that, to give me a greater chance of preventing the cancer from spreading or coming back. This will always be sort of a "wait and see" thing-that's just the way cancer is I think. But having this surgery feels like it will give me a little bit more of an edge over the cancer right now. Also, by removing some lymph nodes from my chest, they can be tested for cancer which will give me and my doctors more solid information to help decide on future treatment after surgery. If for example, something like six lymph nodes are found to have signs of cancer that would influence my choice to go for full blown treatment again after surgery, but if no cancer is found or only one lymph node (as my scans seem to indicate) shows sign of cancer then that would help me to feel confident in choosing to get just the Avastin or maybe the Avastin in combination with the Xeloda. Anyway, there is a lot for me and my family to think about and I definitely will not make a final decision until meeting with Dr. Mitchell and Dr. Chung and Dr. Downey again. I will definitely keep you guys posted on all of those appointments.
On a lighter note, Erica and I had a really good time during our weekend in NYC. We did some shopping and went out to dinner and walked around the city and stopped by St. Patrick's Cathedral. Erica also had an appointment with her oncologist and had treatment too on Monday. I just wanted to also add that Erica was really helpful last November when my scans showed that the cancer had spread and I decided I wanted to get a second opinion at Sloan. Sloan-Kettering is a pretty incredible hospital and I have been really impressed both times I have gone there.
Anyway, I hope everyone is having a good night. I will post another message after meeting with Dr. Mitchell. Thanks as always for everyone's messages--it's so great to hear from so many people!
Hi! Well I had another great weekend thanks to Stix for Nix! This past Saturday was the Stix for Nix indoor field hockey tournament at Haddonfield Memorial High School (where I went to high school and played field hockey.) It was such a great day! A bunch of us got there early around 7 to start setting up the registration tables, the colon cancer informational tables, the food in the cafeteria, and the 2 indoor gyms where the games were played. Teams and players started arriving around 8:30 and after an introduction from Alicia (the Head Varsity field hockey coach at HMHS), games got started by 9:30. The tournament was double elimination, 20 minute games, 6 v 6/5 v 5/7 v 7 depending on how many players each team had, and games were played indoors in both gyms at the high school. The games were a lot of fun and there were a lot of teams that turned out to play-I think the final total was around 25 teams which was awesome. There were also a lot of supporters and spectators who came out to watch the games too. There was plenty of food available in the cafeteria, lots of baked goods, pizzas, hot dogs, and tons of drinks. The championship game was over at 4:30. Unfortunately my team didn't make it, although we did win our first two games. It was so great to see so many people I hadn't seen in a while, a lot of girls I had gone to high school with and a lot of parents too. It was such a fun day! Everything went so well--it was such a great success!
Of course this wonderful day wouldn't have been possible without a lot of people. I wanted to thank Court first and foremost for thinking of such a great idea and especially for all the organization, time, effort, and all the little details she put in to make the day happen (all while working full-time, going to school to get her MBA, and planning a wedding!). I also wanted to thank Alicia for running the actual tournament-there were a lot of teams, but she handled everything expertly and it all went really smoothly. I also wanted to thank all of the people who helped out with all of the food--OhChar and Uncle Rick, the Stantons, the Alberricos, and the Vescis. Of course I'd also like to thank all of the great sponsors for the tournament! They are all listed on the back of the fabulous t-shirts Court had made! I wanted to thank Michalla for making all the awesome Stix for Nix signs--they looked so great! And of course lastly, I wanted to thank all of the players who came out and played a great day of hockey! It was incredible to see so many teams out there, so thank you for everyone who put teams together!
I had treatment yesterday--it was my 12th (or my second of the third set of five). My oncologist decreased my dosage of the irinotecan back to where it was for my 3rd, 4th, 5th, 6th, and 7th treatments, since my side effects had gotten so severe the last two treatments. We'll see how the end of this week goes and depending on the severity of the side effects, I can hopefully start building up my dosage again. Everything went well on Monday and I will be disconnected tomorrow as usual. My mom and Ryan were there on Monday to keep me company so that was fun. Anyway, thanks again to everyone who made the Stix for Nix hockey tournament possible, it was such a great day and I will never forget it! I hope everyone is having a good week!